NEW Dysphagia Support Group in the Greater Phoenix Area

On Friday, March 11, from 3:00 pm to 5;00 pm, the National Foundation of Swallowing Disorders is kicking-off a support group for those with swallowing disorders.

Future meetings are scheduled for the second Friday of the month from 3:00 pm to 4:00 pm.

Morningstar Senior Living has graciously offered to host our meetings. Morningstar is located at 21432 N 75th Avenue, Glendale, AZ 85305. http://www.morningstarseniorliving.com/communities/morningstar-at-arrowhead/

As this is our first meeting, this will be a planning meeting where we discuss the needs of the community.  Future topics will include:

  1. Feeding tube management
  2. Thickening products and thickening procedures
  3. Oral Care
  4. National Dysphagia Diet
  5. Compensatory swallowing techniques
  6. Social/emotional ramifications of dysphagia
  7. Optimizing reflux management
  8. New advances in Dysphagia Management
  9. Role of nutrition in maximizing swallowing function
  10. Dysphagia, from the eyes of the caregiver
  11. Free water protocol
  12. Understanding Aspiration Pneumonia
  13. Long term effects of radiation therapy
  14. Living with Xerostomia
  15. Naturally thickened liquids. Naturally pureed foods
  16. Customizing dysphagia therapy
  17. Understanding normal swallowing function
  18. Stroke and Dysphagia
  19. Voice and Swallowing…How are they connected?
  20. Dysphagia Diet Recipes
  21. Maximizing outcomes through the interdisciplinary team approach
  22. How are swallowing problems diagnosed

This swallowing disorder support group is open to patients, caregivers, clinicians and anyone who has questions and needs support and resources to live their best lives.

If you need more information or plan to attend, please email Laura Michael at: Laura@dysphagiasupplies.com.SSSC 2016 booth

Hope to see you there!

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Want to make bread, cakes and baked goods safer for those with a swallowing problem? Watch this video!


What to Expect from a Swallow Consultation

By: Kayla Suarez, MS, SLP-C

When swallowing issues are first noticed at home, the primary care doctor is the generally a patient’s first point of contact. When discussing a swallow problem with the doctor, it is helpful to have the following information prepared, so that you can provide the most powerful description of what is happening during mealtimes. A consult may be placed to a swallowing specialist, such as a speech-language pathologist or an occupational therapist.

During a swallow evaluation, a specialist will ask questions regarding the swallow dysfunction and conduct a brief meal trial to observe the problem in the clinic.  If ordered by a doctor (often at the suggestion of the swallow specialist) an assessment called a Video Swallow Study sometimes called a Modified Barium Swallow may be performed. This involves taking food or liquid mixed with barium, a radio contrast, under fluoroscopy, or a video x-ray machine. This is a non-invasive procedure and usually takes 45 minutes or less.

This assessment is the gold standard of swallowing evaluations because it provides the most information. From this x-ray video, a trained specialist can identify the disruptions in the swallow pattern that are involved in the dysphagia. During this assessment, clinicians can observe to see if any swallow maneuvers are beneficial. It also gives the clinician information to determine what type of swallow exercises would be suited for the patient’s individual dysphagia.

After the assessment has been completed the swallowing specialist will give their impressions of the swallow function to the patient and a copy of the report to the primary doctor. Recommendations regarding the texture, position, and rehabilitative exercises may be offered. Exercises are suggested to help recover or maintain swallowing abilities, not unlike recommendations from a physical therapist. It is important to clarify any questions regarding the exercises or diet modifications with your healthcare provider. The ultimate goal is eating safely and preserving swallow function while keeping mealtime enjoyable.

Kayla Suarez received her MS in Speech-Language Pathology from Mass General Hospital Institute of Health Professions. She has a deep interest in dysphagia and food. You can contact Kayla at kaysuarez@gmail.com or visit her website at dysdine.com.

Dysdine w.forks


Webinar Series for Swallowing Disorder Support

NFOSD Logo 2.1.13

Webinar Series

The National Foundation of Swallowing Disorders is offering a series of patient-centered webinars on the latest research on swallowing disorders. Experts in the field of swallowing disorders such as tongue stem cell research, nutrition, aspiration pneumonia, as they relate to swallowing disorders. If you have a swallowing disorder or are Speech Language Pathologist (SLP), please share this information with them. For more information, visit their website: http://www.swallowingdisorderfoundation.com

 Cost: Free for members. Nominal donation required for non-members.

Webinar #1: July 15, 2014

            Adult Human Tongue Stem Cell Research 

                        Dr. Peter Belafsky

Webinar #2: August 27, 2014

            The Role of Electrical Stimulation in the Treatment of Swallowing Disorders  

                        Dr. Christy Ludlow

Webinar #3: September 30, 2013

            How to Find the Right Professional to Help with a Swallowing Disorder

                       Nancy B. Swigert, MA, CCC-SLP, BCS-S.

Webinar# 4: November 4, 2014

            Aspiration Pneumonia in Patients with Swallowing Disorders

                        Tiffany Mohr, MA, CCC-SLP

Webinar# 5: December 2, 2014

            I-Pro Swallowing Solutions 

                        Dr. JoAnne Robbins

Webinar #6: January 27, 2015

            Nutrition and Dysphagia

                        Laura Michael, BS

Webinar #7: February 24, 2015

            Degenerative Disease and the Impact on Swallowing

                        Dr. Michelle Ciucci & Dr. Emily Plowman

Webinar #8: April 7, 2015

            Clinical Implications of Swallowing Research

                        Molly Knigge, MS, CCC-SLP

 

The NFOSD is an all-volunteer 501(c)(3) non-profit organization that relies on the generosity of our family, friends, and members to provide the financial support required to carry out our commitment to providing patient hope and improving the quality of life for those suffering from all types of swallowing disorders. We do this by enhancing direct patient support, education, research, and raising public, professional, and governmental awareness. Our mission is to advance the prevention and treatment of swallowing disorders in our lifetime.