Raising Awareness for National Dysphagia Awareness Month

June is Nationa Dysphagia Awareness Month so I made this “shout-out” to Kathie Lee Gifford and Hoda Kotb so they can help us raise awareness. I hope this helps you and other who struggle with dysphagia and swallowing disorders. Enjoy!


Tips for Thickening Nutritional Supplements

If you are on thickened liquids, how can you safely drink pre-made nutritional shakes like Boost and Ensure? This video will help answer your questions.


“How to Puree Just About Everything” – A How-To Video

Though I haven’t posted recently, I have been busy.

I am in the process of filming cooking lessons on the techniques neccessary to puree almost every food. There will be five lessons in all.

The cooking lessons will be on a DVD that will be included in the purchase of my care manual “Making Every Bite Count”. Because this information is essential to living on a puree diet, I hope to make all the full length videos available to view online for a small fee.

Through these cooking lessons, I will show you how to modify the foods you love so you can still eat them if you are on a puree diet.

First up: Meat

Pureeing meat can be a real challenge! Cooked meats can be hard to puree because meat protein form tight bundles that need can be difficult to chew, let alone puree. When pureeing meat, keep in mind that:

  1. you need to start-out with cooked meat
  2. meats that are easier to chew will also be easier to puree
  3. you’ll need broth or other cooking liquid
  4. you’ll need an instant food thickener to bind the puree into a cohesive mass for safe swallowing
  5. purees don’t have to be soupy
  6. purees can taste great!

This video is just a snap-shot of the full video, so take a look and get some ideas!

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Finding Support for Swallowing Problems

It is so easy to feel alone when you are diagnosed with a medical condition that requires modifying and changing all the foods and beverages you eat and drink. We take the ability to eat and drink for granted. After all, you’ve been eating and drinking your whole life!

For many of us, eating and sharing meals is how we socialize. Food also has a strong cultural significance. Not being able to share in the joy and satisfaction of enjoying a meal can leave you feeling isolated. This is why it is so important to find the support for managing you condition.

You are most certainly not alone.  In 2013, more than ten million Americans had a swallowing test. The National Institutes of Health estimates that one in six Americans over the age of 60 is having trouble swallowing. The US spent over 500 million dollars in dysphagia-related hospital re-admissions in 2013. The statistics are staggering.

The National Foundation of Swallowing Disorders is a great online source of information and support. (Disclaimer: I am a board member of the National Foundation of Swallowing Disorders) The NFOSD offers topical information, webinars, patient support, education, referrals and all things related to research and treatment for swallowing disorders. The NFOSD webinar series covers topics like how to find the right professional to help with a swallowing disorder, nutrition and dysphagia (my specialty) and more. The goal of the foundation is to “advance the prevention and treatment of swallowing disorders in our lifetime”. For more information, visit this website:

 www.swallowingdisorderfoundation.com

Swallowing problems often co-occur with other health issues like Alzheimer’s, ALS, Stroke and Parkinson’s disease. For disease-specific information visit:

ALS Association                                                             www.alsa.org

Alzheimer’s Foundation of America                       www.alzfdn.org

The Alzheimer’s Association                                     www.alz.org

American Parkinson’s Disease Association           www.adaparkinson.org

National Stroke Association                                      www.stroke.org

Support for People with Oral, Head, Neck Cancer   http://www.sponhc.org

If you are caring for a child with eating or swallowing problems, a great resource is Feeding Matters. Visit their website: www.feedingmatters.org.

If you are looking for support close to home, contact your local hospital. Many hospitals have community outreach and support groups. If your local hospital doesn’t have a swallowing disorder-specific support group, ask them to create one. Or contact your community senior center. Many communities offer support for their aging population.

Making changes to habits and lifestyle can be hard, especially when it is something as basic as eating. Finding the support of others with the condition and from those who treat the condition can make the adjustments and modifications a little easier to swallow.

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Aids for Daily Living help those struggling to feed themselves

When I speak to dementia support groups, I mention how helpful it can be to use specially adapted eating utensils. Something as simple as a fork with a larger handle can help restore a bit of dignity to someone who is struggling with feeding themselves.

Recently, I was visiting my friend Yolanda Romero-Alemany in her medical supply store and I saw the helpful eating/feeding items she stocks. Yolanda is a great resource for medical equipment and supplies so I asked her to write this guest blog:

Ever wonder why restaurants’ menus and interiors often are red?  Studies have shown that the color red stimulates the appetite. 

How does this relate to people eating independently, especially those with Alzheimer’s or Dementia?  Red is the color easiest to perceive for Alzheimer’s and Dementia patients which makes it great for tableware.  Many Alzheimer’s patients do not eat enough due to lack of hand-eye coordination with silverware or not being able to distinguish the food from the serving bowl/dish.  At Scottsdale Medical Equipment & Supplies, we carry the Power of Red line of utensils, bowls, and cups by Essential Medical.  The red dish and bowl have nonslip bottoms which hold it in place while eating and the great red color provides contrast between the food and dish.  The forks and spoons have large handles to make it easier to grip and can actually bend so the motion to scoop something up from a bowl to the mouth is easier.  The Power of Red line also includes a cup with a nose cutout so people don’t have to tilt their heads back to drink.   These items range in price from $18-$45.

Scottsdale Medical Equipment & Supplies stocks other Aids to Daily Living products carried at our store in Scottsdale, on the NW corner of Loop 101 and Shea Blvd. We stock many eating/feeding tools which make meal time more enjoyable for everyone. 

If you are in the area, stop by our store is at 8752 E. Shea Blvd, Scottsdale, AZ 85260 and “Let our Family Take Care of Your Family”.

 

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