NEW Dysphagia Support Group in the Greater Phoenix Area

On Friday, March 11, from 3:00 pm to 5;00 pm, the National Foundation of Swallowing Disorders is kicking-off a support group for those with swallowing disorders.

Future meetings are scheduled for the second Friday of the month from 3:00 pm to 4:00 pm.

Morningstar Senior Living has graciously offered to host our meetings. Morningstar is located at 21432 N 75th Avenue, Glendale, AZ 85305. http://www.morningstarseniorliving.com/communities/morningstar-at-arrowhead/

As this is our first meeting, this will be a planning meeting where we discuss the needs of the community.  Future topics will include:

  1. Feeding tube management
  2. Thickening products and thickening procedures
  3. Oral Care
  4. National Dysphagia Diet
  5. Compensatory swallowing techniques
  6. Social/emotional ramifications of dysphagia
  7. Optimizing reflux management
  8. New advances in Dysphagia Management
  9. Role of nutrition in maximizing swallowing function
  10. Dysphagia, from the eyes of the caregiver
  11. Free water protocol
  12. Understanding Aspiration Pneumonia
  13. Long term effects of radiation therapy
  14. Living with Xerostomia
  15. Naturally thickened liquids. Naturally pureed foods
  16. Customizing dysphagia therapy
  17. Understanding normal swallowing function
  18. Stroke and Dysphagia
  19. Voice and Swallowing…How are they connected?
  20. Dysphagia Diet Recipes
  21. Maximizing outcomes through the interdisciplinary team approach
  22. How are swallowing problems diagnosed

This swallowing disorder support group is open to patients, caregivers, clinicians and anyone who has questions and needs support and resources to live their best lives.

If you need more information or plan to attend, please email Laura Michael at: Laura@dysphagiasupplies.com.SSSC 2016 booth

Hope to see you there!

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Want to make bread, cakes and baked goods safer for those with a swallowing problem? Watch this video!


Webinar Series for Swallowing Disorder Support

NFOSD Logo 2.1.13

Webinar Series

The National Foundation of Swallowing Disorders is offering a series of patient-centered webinars on the latest research on swallowing disorders. Experts in the field of swallowing disorders such as tongue stem cell research, nutrition, aspiration pneumonia, as they relate to swallowing disorders. If you have a swallowing disorder or are Speech Language Pathologist (SLP), please share this information with them. For more information, visit their website: http://www.swallowingdisorderfoundation.com

 Cost: Free for members. Nominal donation required for non-members.

Webinar #1: July 15, 2014

            Adult Human Tongue Stem Cell Research 

                        Dr. Peter Belafsky

Webinar #2: August 27, 2014

            The Role of Electrical Stimulation in the Treatment of Swallowing Disorders  

                        Dr. Christy Ludlow

Webinar #3: September 30, 2013

            How to Find the Right Professional to Help with a Swallowing Disorder

                       Nancy B. Swigert, MA, CCC-SLP, BCS-S.

Webinar# 4: November 4, 2014

            Aspiration Pneumonia in Patients with Swallowing Disorders

                        Tiffany Mohr, MA, CCC-SLP

Webinar# 5: December 2, 2014

            I-Pro Swallowing Solutions 

                        Dr. JoAnne Robbins

Webinar #6: January 27, 2015

            Nutrition and Dysphagia

                        Laura Michael, BS

Webinar #7: February 24, 2015

            Degenerative Disease and the Impact on Swallowing

                        Dr. Michelle Ciucci & Dr. Emily Plowman

Webinar #8: April 7, 2015

            Clinical Implications of Swallowing Research

                        Molly Knigge, MS, CCC-SLP

 

The NFOSD is an all-volunteer 501(c)(3) non-profit organization that relies on the generosity of our family, friends, and members to provide the financial support required to carry out our commitment to providing patient hope and improving the quality of life for those suffering from all types of swallowing disorders. We do this by enhancing direct patient support, education, research, and raising public, professional, and governmental awareness. Our mission is to advance the prevention and treatment of swallowing disorders in our lifetime. 


Mom & Dad

M, D, L 2006 cropped

When you are a caregiver, it is easy to feel alone and overwhelmed. If you are a family caregiver, it may feel even more challenging because of family dynamics and family roles. Even when you are doing your best, you can’t seem to “fix” what is going wrong. Often, family caregivers are thrust into the role without much preparation. Whether you are caring for an aging parent or a spouse or child with an unexpected illness, switching gears and roles can be HARD.

When you are in the thick of it, please remember to “take the oxygen mask for yourself” before you assist the person you are caring for. “Taking the oxygen mask” means looking after your own basic needs. Take time to eat, rest and care for yourself. You need to do those things that rejuvenate you. Doing so does not make you selfish, it makes you smart. If you can’t breathe deeply or if your body, mind and soul are not nourished, you will no doubt fail. There is only so much of you to go around.

When my mom was in the thick of it, when Dad had more bad days than good, I would remind/nag/cajole her to take time for herself. Many, many times I told her: “I’m losing Dad to Lewy Bodies; I don’t want to lose you as well”. She listened. She asked for help and assistance within the family, from her friends, in the community and through support groups. As the old saying goes: “Many hands make the burden light”.

My parents had always been the first to volunteer when there was an emergency or need whether it was in the family, within the community or among their friends. I am grateful that their community responded when Mom and Dad were in need. Both of my parents taught me the true meaning of grace and courage.

Dad has been gone five years now and Mom continues to move mountains.

In my next blog post, I will share some of the great support groups and online communities in which I have found strength and support. In the meantime, if you would like to contact me, please visit my website: http://www.dysphagiasolutions.com.


Nourishing Independence with Mom’s Meals

Recently, I worked with a client who had just returned home after six weeks in hospital and rehab. “Irene” had been a vital, active 78 year-old woman before her stroke. More than anything, Irene and her husband “Bob” want to get their lives back to normal.

Since Irene has arrived home, Bob has been working overtime managing all of the activities that come with recovery from stroke including: scheduling doctor’s appointments then going to the appointments, ordering and receiving a hospital bed and wheel chair, juggling therapy visits, picking-up prescriptions, making the house wheel chair friendly and opening all the mail that accumulates while you are occupied away from home, just to name a few.

Bob asked me to help him learn how to cook for and feed Irene. Before the stroke, cooking was Irene’s job in the family but Bob will do anything it takes to care for his wife, including learning how to cook at 78 years-old! Being a bit overwhelmed, Bob has no time to cook for himself, let alone cook and then puree meals for Irene. I’m glad that there are foods like Mom’s Meals – Purees to recommend to him.

Mom’s Meals is an online supplier fresh-cooked, ready-made refrigerated pureed meals. Each meal has a main dish, vegetable and dessert. Their menu consists of comfort foods like:

  • Scrambled Eggs with Brown Sugar Pork Loin Bacon, Bread and Applesauce
  • Roast Beef with Gravy, Mashed Potatoes, Brown Sugar Glazed Carrots, Vanilla Pudding and Applesauce
  • Pork with BBQ Sauce, Cheese Mashed Potatoes, Green Beans, Fruit and Chocolate Pudding
  • Roasted White-meat Chicken with Gravy, Mashed Potatoes, Green Beans and Carrots, Fruit and Vanilla Pudding
  • Pasta with Marinara Sauce and Broccoli, Blueberry Applesauce and Pudding

You order online (or by phone) and Mom’s Meals ships directly to your home. The meals have a 14 day shelf life and are easily reheated in the microwave.

I sampled four meals and I found them delicious and hearty. At between 600 and 700 calories per meal, they are ideal for helping to rebuild your strength. With four breakfast menus and eight lunch/dinner choices, you have some ability to eat a variety of foods. If you like home-cooking, Mom’s Meals purees will appeal to you, as they did to Irene and Bob.

Each full puree meal is $7.49 plus shipping. Shipping is $14.95 regardless of the size of your order.

And if you are too busy to cook, like Bob, check-out their regular meals, as well!

To order from Mom’s Meals purees visit their website: http://www.momsmeals.com/independent-at-home/pureed-menu/.

If you need advice, please contact me: laura@dysphagiasupplies.com or 480-266-5622.

moms meals


Finding the “New Normal”

Years ago, when I brought home my newborn son, I stumbled as I tried to find my “new normal”. Major life events mean that life has to change in a big way. The “normal – normal” seems to no longer exist.

Those first few weeks of caring for a totally dependent new life were exhausting, scary, “real” and totally overwhelming. Days were measured by feedings, naps and diapers. Since eating is such a basic part of living, I expected that feeding my son would come naturally. It didn’t. We had challenges. I met with Lactation Specialists in the hospital. I read everything I could get my hands on. What helped me most was reaching-out to other moms and getting advice.  Slowly, as I became more comfortable and confident in my role as mommy/care-giver and after my son started eating regularly, the days started to make sense.

I like to compare my experience as a new mom to what families go through when a loved-one is sent home from the hospital after a stroke or other debilitating illness. Care-givers are thrust into roles they’ve probably never before navigated or at least have never practiced on their wife or husband or parent. Many people are often unprepared for the realities of managing the demands of cooking for someone with a swallowing disorder. Unfortunately, the “old way” of preparing meals won’t work anymore and the transition can be difficult. There are no “pureed diet” cooking shows on the Food Network. No famous chef has written a book about how to make pureed foods and beverages safe, nutritious and delicious…but I have.

I have dedicated my life to helping people eat, drink and return as close to “normal” as possible, as they navigate the road to recovery at home. During the ten years I spent working with staffs in hospitals, rehabilitation units and long-term care facilities, I taught many people how to properly manage foods and beverages for their patients with dysphagia. What I teach isn’t difficult or expensive but it can be critical to caring for someone who is living with a swallowing disorder.

The “new normal” will come with time and with a little instruction, a dose of creativity, and the right products. You can help restore the joy of eating and drinking to someone who is living with dysphagia.

If you need help or assistance, please contact me: laura@dysphagiasupplies.com

 

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